Wednesday, April 30, 2008
They wanted us to go to rehab...
Tara's amputation continues to bring out the best in so many people. A bus driver yesterday insisted on us riding free - and it's not like he was even a nice guy. He YELLED at some other people. And a teenager jumped up with a huge smile to give Tara a seat on the train yesterday. It's never happened before! (Shame, a very large blind guy tried to sit in Tara's empty wheelchair - managed to get him out before he and the chair fell over...)
Best news yesterday was that Tara can now swim...and occasionally use crutches - altho' we're gonna hold off on that one coz if she falls the delay will be mega-months. So she insisted on her first swim last night. And it was just beautiful. Jadie turned into the twin you wish you had - swimming with Tara, doing handstands, pogo-ing thro' the water - and then the two had their first bath together in months. (The last few weeks, Tara's baths have been very non-glam - all alone to prevent infection, with her leg hoisted onto a roof-like lid of a rubbish bin which was the only waterproof item we could find to keep her leg out of the water!).
She continues to have a fantastically healthy outlook. Like I happened to mention how gorgeous the modelling teacher's legs were and Tara (sitting in the back of the car with her sisters) said "what about ours?" (so I told her their's are all fab too). But she's aware in a good way that she has something a little different - yesterday, between Rehab and the Physio I had to push her past the very crowded cafe - and she didn't have her bandage on. So she goes "oooh, people will see my leg". So I said "is that a problem?". "Oh no!" she answered. "I want people to be able to see my stump." And just outside the cafe we saw a man with a really mangled and shrivelled body, curled up weirdly in a wheelchair, and Tara said "you know, that man probably thinks he's normal, because for him, he is normal".
So - in the spirit of Tara's "let them see me as I am" attitude - today's pic at the top is the first public photo of her unbandaged, bare, naked stump (currently called Stumpie Star by the girls)...and two very squishy faces with tight swimming caps on!
Below is Tara's first swim in the indoor pool - it was late at night so a bit dark - Tara on the left, Jadie on the right. BTW - new blog post below as well (I've published 2 at once here).
Seagulls and Surfers
The twins had a friend's birthday party on Saturday - and the lovely mum told us that she's gonna raise money for the Royal Brisbane Children's Hospital in her next marathon (because Alex had told her about Tara's experience - where there were days when no food arrived, machines didn't work, wards were full etc.). So that's fantastic! It's kinda like the NHS here - a service that's soooo needed and yet not well supported. And yikes - would be awful to turn into America's health system!
Another kind mum approached us and offered up her husband if ever we needed his services (I don't know if she's told him!). And a very brave mother invited all 3 girls for a sleepover on Saturday night! They LOVED it - were totally spoilt (altho' Jadie did predictably cry a little at night coz she missed us - but Tara comforted her).
Tone and I had a fab stroll to Surfer's - fastest one we've done forever (sans kids makes a difference!). Had Nando's for old time's sake and then watched Sean Penn's Into the Wild - which happened to be the book Paul was reading when he died. So it was interesting. Heartbreaking.
Not sure if it's Tara's op, pressure of tryna work when there's so much other stuff to do, or just genes - but Tone's blood pressure's a little on the high side...so we're tryna get him to chill, chill, chill! Thanks to everyone for their support - especially YiaYia and Bapou! Thank you.
Thursday, April 24, 2008
Goodbye Lizzie Loo
Tara's developed some party tricks - like asking Lizzie Loo to say hello to Leggie Loo - and then flapping her stump up and down to say hello. When she's really excited - which is a LOT lately - she flaps her stump so fast, she's like a dog wagging its tail. The scab on her scar is unfortunately still there, so we still can't start the process of shaping her stump for the prosthetic. But we're having a good time in between. It's amazing how good these set backs have been. I don't think we would've coped nearly as well with Tara's op if it had been when we first thought it would be back in January. We were so not ready for it then, in retrospect. So now we've been directed to soak Tara's stump in the bath as much as possible to help soften the scab. It's a very strong sensation for Tara - that feeling of the water on her skin. And she can't understand why her stump feels so heavy in the bath, compared to her other leg which is longer...and unfortunately nor can we (so if anybody knows the scientific answer - please yell).
Tomorrow it'll be a month since Tara's op - I had this vision that she'd be like JFK when he was a kid - bedridden and immersed in books - with so many successful people (even Carly Simon) you discover that they were stuck in bed for ages as children. But thanks to DSs, DVDs, laptops and a kid who REFUSES to be bedridden - Tara hasn't quite read as much as JFK...and in fact has probably been the most active of all of us - rushing around like a cheetah on 3 limbs, or hopping on one leg...even jumping on the trampoline...
She's been a little angel - lots of loving (helped by having her Lizzie Loo here). Actually - one of the moms at school told me how her daughter was so happy because Tara had told her that everyone has guardian angels looking out for them. And it was so poignant the other day - we met up for coffee with a friend who recently lost his brother, and Tara curled up snugly in his lap the entire time we were together, occasionally stroking his shirt. We all thought maybe she was cold and just loving the comfort of C hugging her. But afterwards she told me she was trying to pour all her love into him to help him feel better.
The rest of the holidays were fab - lots of social visits and play dates - and first day back at school was so good that the teacher had to have a word with the class to stop giving Tara so much attention! Cassie was voted Form Captain of her class (wow! well done!) and gorgeous little Jadie made it into the coveted Top 20 in the cross country race (amazing!)! It's so funny though. You do what you can to try and give everyone attention...but still it's never enough. Cas wrote Tone and I each a note on the paper tablecloth at Lemongrass (the local Thai restaurant), begging for a day alone with each of us. So we've gotta work on that one even harder! (And be very grateful that at least they wanna spend time with us!)
Lizzie threw the girls an early birthday party and gave them these fab wigs (below) that they've barely taken off! Tone and I are both suffering such mental traffic jams that today I was arranging a playdate for the twins for next Saturday...and totally forgot it would be their birthday! Argh! Great mom! We were talking about it at school - how we adults have so much on our minds that only gets processed while we (try to) sleep or in conversation - whereas with kids (particularly girls) they role play the new stuff they're learning and process it in a simple, fun way. Like on Sunday at the Patons the girls turned Bella's room into a hospital ward - and they used the office swivel chairs as pretend wheelchairs to get around. And a couple of parents have mentioned that their daughters have been doing the same with their friends - playing hospitals and taking turns being Tara. (When Tara plays she pretends she's someone else who's had a wildly dramatic accident.)
So we're off to Broken Head tomorrow - just south of Byron Bay - to relax, rewind and spend a day chilling with the girls and their cousins who are camping down there. It's a big day for Australia - Anzac Day - to honour and remember our soldiers who sacrificed their lives in World War I. Thank you! We're loving our lives - the freedom - and it wouldn't be like this without brave men (and young teenagers, Cassie informed me today) like that.