Tuesday, April 1, 2008

Sore Limbs and Lizards

Oooh - after a balmy day yesterday including home schooling with Granny and walks to the beach; today was a big bump. We took Tara thro' to Brisbane for her first bandage change and altho' Tone suggested we give her extra pain killers - we didn't (totally my fault for not absolutely agreeing with him! Argh! Always listen to Dr Tone!). We did check with the specialist but he thought she'd be fine...but, sob, those new bandages hurt her when they were getting wrapped around her raw red skin. So she hit a wobbly and shed a few tears, little darling. Held our hands tight and cuddled her Lizzy (pet elephant) and Joey (pet cat). The nurses said she was probably also in a bit of shock after seeing her leg without bandages for the first time. And I think they were right because a little later we went for a walk and she said "I'm not scared, but I think next time I won't look...until it's healed and better". 

Interestingly it turns out that these sensations are actually good for her to feel (altho' we will be giving the drugs next time!) - apparently with all the nerves that have been cut in her leg - the brain now needs to rewire everything - and can't do so without feeling the different sensations. So that became a little exciting - the thought that as she heals, her leg will get to experience the feeling of things (like running water) as if for the first time ever. She wheeled herself around Brisbane city centre for the next hour or so, and took notice of every single different texture and sensation she felt as she rode over concrete, carpets, tiles etc. Almost like being blind and then seeing for the first time...And then we got wildly distracted by the crash of a truck getting caught underneath the pedestrian bridge opposite the museum. Hence the pics of semi-elevated truck, and subsequent fire engine! Quite exciting! (And the driver was fine.)

Cassie did a show-and-tell about Tara's operation today - and then this evening it was so cute watching each of the girls sitting on their beds delivering similar show-and-tells to all their soft toys. Tara's dolls got the bonus of being allowed to each touch her stump - but they had to be gentle and got told off if they touched the white bit at the end (where there are a couple of blisters) instead of sticking to the pink section. She also lay them all on their back and made them do exercises with her!

She had a fab afternoon with a visit from a schoolfriend - just what she needed (and she was such a darling - she gave Cassie one of her pressies with a beautiful note and drawings about how she could see that Cassie was sad and she just wanted to help her be happy). Her day ended with a gorgeous chat with her Lizzie Loo (coz Tara had phoned and left a message saying she wished Lizzie Loo were here) and a really funny conversation at dinner about how she used to think she was going to get amputated every year and how lucky she had thought lizards are coz they can grow new tails. But then Cassie said "yeah, but they can't ice-skate and ride bikes...and anyway, they can't grow new legs!"

4 comments:

Family Santos said...

Good Morning Tara,So lovely to chat to you on the phone though I wasn't altogether sure if you could hear me. My office friends were laughing so much because I would chat-chat-chat on about something then there'd be a short pause when you'd say "Beg your pardon" and so we'd carry on. Or rather I'd carry on. I'm not sure if you managed to say much but it was lovely to hear your voice and that you sounded just as bubbly as always (though you do know you can phone me when you're grumpy too don't you?!)

Please remind me next time we speak to ask is that a coincidence that your elephant is called Lizzie? Because your mummy also sent me a birthday card of Miss Piggy saying it reminded her of me. Hmmmmm!

Loved the mini-clip of you dancing....too groovy.

Speak soon. Lots and lots of love and welcome home. I miss you,

Love your
Lizzie-Lou. x

Anonymous said...

Dear Tara
We haven't ever met you (which is VERY unfortunate)but Jimmy and your Dad are very close cousins. They had wonderful beach holidays in Scotborough when they were your age.
We just wanted to send you lots and lots of love and say well done for being such a brave and clever girl! We love your blog and really enjoy seeing how you are all getting on. Your wheelchair looks fantastic!
We think of you all so much and think it is time we got ourselves over there for a lovely holidy on the gold coast!
Lots of love to your gorgeous sisters, and Mom and Dad too.
Jimmy, Taryn, Noah (who is nearly 7) and Zack (who is 4 and a half)
XXXXX

Family Santos said...

Hi Tara, its Zack here. I don' t have much time to write because its 10 30 at night and my mum says I have to go to bed but I wanted to say HI to you first. So hi and bye for now. From ZacK. x

Anonymous said...

from steve , sian zoe and portia
so excited to see the photos of Tara looking so happy and well with her friends and gorgeous sisters. Can't tell you how relieved we are that it all went well.

Hey Tara
Must be GREAT to be home , although it sounds like you managed to have some good fun in the hospital.
We are so proud to have you as a friend you are awesome.xxx